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About

Heather Shorten, MSW, LSW

Founder and Executive Director

Heather Shorten founded Pompe Alliance in 2018 because she saw a need for a patient centered organization to educate and advocate for the Pompe community.

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Our Story

Here at Pompe Alliance, we see the value in everyone. We want to be a catalyst for positive change, and since our beginnings in 2018, we’ve been driven by the same ideas we initially founded our Public Services Organization upon: support, empowerment, and progress. Our mission is "To provide supportive services, education and information to patients, caregivers, medical professionals and community stakeholders." 

Board of Directors

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Our Board of Directors is made up of patients, caregivers and profressionals.

Sandra Young, PhD, Interim President

​Jennifer Lowe Davis, J.D., Secretary

Claude Francis

Todd Baker

Carlton Daniel

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