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Our Story
Here at Pompe Alliance, we see the value in everyone. We want to be a catalyst for positive change, and since our beginnings in 2018, we’ve been driven by the same ideas we initially founded our Public Services Organization upon: support, empowerment, and progress. Our mission is "To provide supportive services, education and information to patients, caregivers, medical professionals and community stakeholders."
Board of Directors

Our Board of Directors is made up of patients, caregivers and profressionals.
Sandra Young, PhD, Interim President
​Jennifer Lowe Davis, J.D., Secretary
Claude Francis
Todd Baker
Carlton Daniel
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